Primary Care Perspectives

The Children's Hospital of Philadelphia (CHOP) advocacy curriculum has a rich history of teaching pediatric residents how to incorporate being an advocate into their career as a pediatrician. Noreena Lewis, JD, the Co-Director of the Community Pediatrics and Advocacy Program (CPAP), explains the various ways pediatricians can engage in advocacy, some of the biggest hurdles for resident advocates, strategies for engaging with communities and creating sustainable projects as a trainee, and examples of CHOP resident advocacy projects. Noreena recommends the CHOP Office of Community Impact as a great starting point for anyone interested in starting their advocacy journey! You can also read her article in Pediatrics (Feb 2024) entitled "A Qualitative Study of Resident Advocacy Work." This episode is such an inspiring conversation about an important topic for all pediatricians and medical educators!

New research has led to the approval of sickle cell gene therapy and CHOP has played a big role in both the research and implementation of this innovative treatment. In this episode, Dr. Abraham Haimed, an attending in the Division of Hematology at Children's Hospital of Philadelphia, explains how a patient's own hematopoietic stem cells can be edited to block the expression or function of a certain gene and reactivate normal fetal hemoglobin to cure sickle cell disease. While this treatment happens outside the primary care world, it is important for general pediatricians to understand how this treatment works and what to look out for after a patient receives gene therapy. 

A recent publication in Pediatrics by George Dalembert, MD, MSHP and Aditi Vasan, MD, MSHP helps us learn more about how to use an antiracist approach to social care integration in primary care. In this episode, Drs. Dalembert and Vasan walk us through the recommendations made in their commentary with actionable steps for how we can all integrate social care interventions equitably into our practices. Learn about what the work that we are implementing at CHOP thanks to the Clinical Futures research and get inspiration for your own practice changes. 

As of 2020, 20% of new HIV diagnoses were among young people aged 13-24 years. Primary care pediatricians can play an important role in the prevention of HIV through standard, non-stigmatizing sexual health and HIV prevention care, which is why we are talking about PrEP with Sarah Wood, MD, MSHP, and Zoe Gould, LCSW. Learn about the role of PrEP, administration, barriers to care, and ways to start integrating HIV screening and PrEP initiation into your practice. 

The CHOP Neonatal Intensive Care Unit is working on enhancing communication of nutrition plans to primary care providers when infants are discharged. In this episode, Sarvin Ghavam, MD, an attending neonatologist and Kristina Spaide, MS, RD, CNSC, clinical nutrition manager, identify the unique nutritional needs of premature babies, common feeding concerns, and nutrition management pearls for the transition from NICU to home. 

How well do you know the stigmata of Marfan Syndrome, which are an important components of the pre-participation sports physical? Staci M. Kallish, DO, a clinical geneticist at Children's Hospital of Philadelphia reviews how the clinical diagnosis of Marfan Syndrome is made and tools that can be used in screening and diagnosis. Also, learn about the CHOP Cardiovascular Connective Tissue Disorders Clinic and how they can help in the evaluation and management of patients with connective tissue disorders. 

While many famous figures, including President Biden, have worked to decrease the stigma around stuttering, there are still significant psychosocial effects for many children who stutter. Joseph Donaher, PhD, CCC-SLP, a speech language pathologist at the Center for Childhood Communication at Children's Hospital of Philadelphia, teaches us about the natural history of stuttering, when to refer to a speech therapist or other clinician, and how we can help support the well-being of these children. This is an important listen for pediatricians, parents, and teachers!

How can lawyers and pediatricians work together to improve patient care? Osarugue Osah-Edoh and Andrew Yang, lawyers at Community Legal Services of Philadelphia and in the CHOP Medical Legal Partnership, educate us on how lawyers embedded in the healthcare setting support patients and their families with critical legal needs.

Inflammation, recurrent infections, fevers and rashes, and poor growth may all be ways that immune dysregulation presents in primary care patients. Edward Behrens, MD, Chief of the Division of Rheumatology at Children's Hospital of Philadelphia, discusses the Dysregulated Immune Response Team (DIRT) and their innovative approach to immune dysregulation management. Using a multidisciplinary team, precision medicine, collaborative research, and care coordination, the DIRT program is improving care for patients with rare diseases. 

Google searches for tongue tie, or ankyloglossia, have doubled in the past five years and the number of infants having frenotomies is also increasing. Helping us understand the tongue anatomy and sort out myths surrounding tongue ties is Adva Buzi, MD, an attending physician in the Division of Otolaryngology at Children's Hospital of Philadelphia. Together, we discuss diagnosis, indications for referral, potential benefits/risk of frenotomy, and the myths surrounding ankyloglossia.